| |
 |
About The Society
The LSD Support Society of India is a group, envisaged to be made up of people who know what it’s like to live with Lysosomal Storage Disorders – patients/families/caregivers. It aims to create a strong voice for LSD patients in India by forming a strong national support group. It has been incorporated as a registered non-profit organization to raise awareness and educate the general people about various Rare Genetic life threatening LSDs. [ read more..] |
|
|
| LSDSS Diseases |
Medical Experts |
|
|
POMPE
Pompe disease is a rare (estimated at 1 in every 40,000 births), inherited and often fatal disorder that disables the heart and muscles. [ read more.. ] |
Campaign for early diagnosis and effective, affordable and safe therapies for LSD diseases like Gaucher, MPS, Fabry and Pompe in India. Strive to provide information and support to all patients, their families and others with interests in the related diseases. [ read more.. ] |
|
|
|
|
|
|
DHARNA AT DM - DISTRICT MAGISTRATE OFFICE BY LSD PATIENTS & FAMILIES |
|
|
|
|
|
|
| BREAKING NEWS |
| "FIRST BREAK THROUGH BY LSDSS BY GETTING 100% ERT OF MPS-I FOR A 7 YEAR OLD SLUM CHILD VISHAL OF NEW DELHI. REIMBURSED FROM EMPLOYEES STATE CORPORATION OF INDIA LTD, A GOVERNMENT OF INDIA AUTONOMOUS BODY FOR PRIVATE SECTOR WORKERS EARNING WAGES UPTO RS. 15000/-ONLY. LSDSS OFFICE BEARERS ALONG MPS-I BROTHER OF VISHAL, DHARMENDRA TOILED HARD FOR 18 MONTHS TO GET THIS SUCCESS" |
|
|
|
 |
 |
|
| |
|
|
|
[
